| خلاصه مقاله | Background and aim: Aging is an inevitable stage in the life cycle of every individual, which is associated with
a wide range of physiological, psychological changes, and especially decreasing in cognitive ability.
Alzheimer’s Disease (AD) is one of the most common types of dementia, characterized by severe disorders of
memory, thinking, and behaviour. The prevalence of age-related Alzheimer’s almost doubles every 5 years
after age 65. Caring for Alzheimer’s patients is an overwhelming task and a stressful situation for family
caregivers; because caregivers play a key role in meeting the
physical and emotional needs of these persons, and as the disease progresses, these tasks become heavier
and lead to negative complications in the caregiver as a “burden”. Since the stressful situations that arise
during the care of
Alzheimer’s patients are a unique and exhausting situation for family caregivers; hardiness is considered as
an important personality trait to enable these caregivers to provide proper and appropriate care to these
persons and to prevent problems for both the caregiver and the persons with Alzheimer. Therefore, knowledge
of the status of family caregivers’ hardiness in the care of persons with Alzheimer’s disease and its effects on
quality of life and patient care is essential. This study was designed to understand the experiences of Iranian
family Caregivers’ Hardiness in caring for persons with Alzheimer’s disease in Iran based on the Kobasa
hardiness model.
Material and Methods: The deductive content analysis method was performed between April 2020 and
February 2021 in one of the teaching hospitals in Iran. Fourteen family caregivers of Alzheimer’s patients were
selected using purposive and snowballing sampling and the data were collected by semi-structured
interviews. After that, data were analysed using Elo and Kingas steps.
Results: In this study some generic categories were nested into the main categories of commitment, control,
and challenge; but we developed two new main categories such as connection and culture. In the main
category of commitment, the “emotional tendencies,” “external motivation,” “intrinsic motivation,”
“understanding care,” and “responsibility” were developed. In the main category of control, “knowledge of the
disease,” “promoting knowledge of the caring,” “protecting the patient’s body and mind,”
“self-management,” “condition management,” “caring ability,” and “effective communication with the
patient” was developed. In the main category of challenge, the “high values of caring,” “gaining skills of
caring,” and “mental well-being” were developed. In the new main category of connection, the “supportive
family,” “supportive people,” and “family supporter” were developed. Finally, in the new main category of
culture, “individual values,” “adherence to ethics virtues,” “religion,” and “social values” were developed.
Conclusion: Family caregivers’ hardiness is a trait related to the individual and environmental factors, and the
prevailing social and cultural conditions affect the individual’s perception and experience of hardship and
threats, as well as his/her understanding of protective factors and how to use them. Therefore, hardiness
should not be interpreted as a simple approach regardless of culture.
keywords: Caregiver; Alzheimer; Family |