| خلاصه مقاله | Pnm-15: The Supportive Needs of Iranian Women with Systemic Lupus Erythematosus: A Qualitative Study
Rezaei E
Department of Midwifery, Faculty of Nursing Midwifery, Tabriz University of Medical Sciences, Tabriz, Iran
Email: rezai520@yahoo.com
Background: The effect of lupus erythematosus (SLE) on women’s health has been ignored in the quality of life of them.This study was conducted with the aim of exploring the expectations and perception of women with SLE regarding for supportive needs.
Materials and Methods: This qualitative research was conducted using 27 semi-structured deep interviews with 19 married women suffering from SLE (15-49 years old) selected
through purposive sampling in the referral Rheumatology Center in Iran. Data analysis was performed with a content analysis approach using the conventional method proposed by the Zhang and Wildemuth (2016) by 10 MAXQDA.
Results: The women’s perceptions about need for support were categorized in three subcategories included; 1. support from the spouse (most participants stated that women with lupus could cope with the disease challenges if they had a sympathetic spouse and received the required emotional support from their spouses as the only support); 2. support from the family and acquaintances (They can cope with the disease challenges more easily if they have the necessary family support, support and understanding from their husband’s family, positive influence of friends and acquaintances, and by setting the friends’ spirit), and 3. lack of occupational and social support (They can tolerate their disease by having occupational and social support to escape the thoughts of the disease by working and undertaking different activities, and having financial support to afford the costs of the disease).
Conclusion: It is hoped this research can take a step to enhance the awareness of care providers about these women supportive requires.
Keywords: Systemic Lupus Erythematosus, Women, Qualitative Study |