Identifying the Needs of Families of Children with Autism Spectrum Disorder from Specialists and Parents' Perspectives: A Qualitative Study

Identifying the Needs of Families of Children with Autism Spectrum Disorder from Specialists and Parents' Perspectives: A Qualitative Study


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دانشگاه علوم پزشکی تبریز
دانشگاه علوم پزشکی تبریز

نویسندگان: روح الله خارا , لیلا راننده کلانکش , حسن شاهرخی , سعید دستگیری , کمال قلی پور

کلمات کلیدی: ASD, Family Caregiver, Empowerment, Needs

نشریه: 16598 , 4 , 14 , 2020

اطلاعات کلی مقاله
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نویسنده ثبت کننده مقاله لیلا راننده کلانکش
مرحله جاری مقاله تایید نهایی
دانشکده/مرکز مربوطه دانشکده مدیریت و اطلاع رسانی پزشکی
کد مقاله 75116
عنوان فارسی مقاله Identifying the Needs of Families of Children with Autism Spectrum Disorder from Specialists and Parents' Perspectives: A Qualitative Study
عنوان لاتین مقاله Identifying the Needs of Families of Children with Autism Spectrum Disorder from Specialists and Parents' Perspectives: A Qualitative Study
ناشر 6
آیا مقاله از طرح تحقیقاتی و یا منتورشیپ استخراج شده است؟ بلی
عنوان نشریه (خارج از لیست فوق)
نوع مقاله Original Article
نحوه ایندکس شدن مقاله ایندکس شده سطح یک – ISI - Web of Science
آدرس لینک مقاله/ همایش در شبکه اینترنت

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Background: Families face many challenges in caring for children with autism spectrum disorder (ASD) throughout their lives. Objectives: This study aimed to identify the needs of families of children with ASD from specialists and parents' perspectives. Methods: Semi-structured, in-depth interviews were conducted with ASD specialists (n = 19) and parents of children with ASD (n = 23). Interviews were audio-recorded and transcribed verbatim. Qualitative analysis was conducted using a content analysis approach. Results: The needs of families were divided into nine themes and 11 sub-themes from the perspective of experts and four themes and 17 sub-themes from the point of view of parents. Major themes identified from the perspective of ASD specialists as the main needs of families included knowledge, skills, attitude, social needs, financial needs, educational needs, mental health services, ability to handle other family issues, and ability to deal with the specific child's problems. Also, information, service, support, and financial needs were the four main categories of needs expressed by the parents. Conclusions: In general, understanding the needs of families is among the experts and the families somewhat similar but differs from each other in many ways. Achieving a shared understanding of family needs among professionals, parents, and policymakers can better address those needs.

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نویسنده نفر چندم مقاله
روح الله خارااول
لیلا راننده کلانکشدوم
حسن شاهرخیسوم
سعید دستگیریچهارم
کمال قلی پورپنجم

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